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There is no known cure for ALS. With your help,we can change the future.
Photo Source: Boston.com
Ice Bucket Challenge Advances Antibody Toward Clinical Trial for ALS
100th Patient Enrolled in World's First Precision Medicine Program for ALS
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There are over 300 events that together raised $100 million to support our mission. Will you help?
Dr. Steve Perrin, the CEO of the Institute, said, 'I am not going anywhere. I'm staying here until this is done.' That was the sense you got from each individual. They haven't just bought in to the mission of the organization, they see it as their own personal mission to end this disease.
- Stephen Finger, PALS
See this post from our friend and Young Faces of ALS ambassador, Anthony Carbajal, on the realities of living with ALS. Sending our love to you, Anthony! <3 #EndALS
"Today I received my electric wheelchair.… and I need to make a request from my friends and family to make this an easier transition.
I accept and understand the realities of ALS and I am a firm believer in early adoption. Can I still walk? Yes. But I get fatigued relatively easy and if I trip I don't have the strength in my arms to catch the fall. I've traumatically witnessed my mother and my grandmother trip and fall during their ALS journey. So I decided to get the wheelchair early to help avoid getting broken bones and concussions that in turn could actually accelerate my disease progression.
As of now I don't plan on using it all the time. I'm going to rig it up to make it my official photography chair and I'll take it out when I walk my dog or take a trip to disneyland. And then I'll use it more and more as the disease progresses. But that's OK because I plan on living. I am hoping and advocating for a cure. But if a cure doesn't come I am going to adapt and embrace any and all options that will allow me to live and fight a long life. There is no other option.
So please be positive if you see me in a wheelchair. I don't want to cry every time I see a loved one in my chair and explain why I have it. Please don't be alarmed and worry in front of me. Please help me embrace it and look at it as a positive and how it's going to allow me to always be involved, take pictures, and long walks with my Beautiful wife and dog (Lucy). The end. Love you guys ❤ #KissMyALS #ThereIsLifeWithALS "
Join us 4 our Leadership Summit on 11/13! This mtg will cover ALS research, biomarkers & clinical trials. Register at http://t.co/vTLnjRdKbb