See this post from our friend and Young Faces of ALS ambassador, Anthony Carbajal, on the realities of living with ALS. Sending our love to you, Anthony! <3 #EndALS
"Today I received my electric wheelchair.… and I need to make a request from my friends and family to make this an easier transition.
I accept and understand the realities of ALS and I am a firm believer in early adoption. Can I still walk? Yes. But I get fatigued relatively easy and if I trip I don't have the strength in my arms to catch the fall. I've traumatically witnessed my mother and my grandmother trip and fall during their ALS journey. So I decided to get the wheelchair early to help avoid getting broken bones and concussions that in turn could actually accelerate my disease progression.
As of now I don't plan on using it all the time. I'm going to rig it up to make it my official photography chair and I'll take it out when I walk my dog or take a trip to disneyland. And then I'll use it more and more as the disease progresses. But that's OK because I plan on living. I am hoping and advocating for a cure. But if a cure doesn't come I am going to adapt and embrace any and all options that will allow me to live and fight a long life. There is no other option.
So please be positive if you see me in a wheelchair. I don't want to cry every time I see a loved one in my chair and explain why I have it. Please don't be alarmed and worry in front of me. Please help me embrace it and look at it as a positive and how it's going to allow me to always be involved, take pictures, and long walks with my Beautiful wife and dog (Lucy). The end. Love you guys ❤ #KissMyALS #ThereIsLifeWithALS "
Join us 4 our Leadership Summit on 11/13! This mtg will cover ALS research, biomarkers & clinical trials. Register at http://t.co/vTLnjRdKbb
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