Our Team

We are led by people living with ALS and their families. From the chairman of our board, to our scientists, to our fundraisers, everyone at the ALS Therapy Development Institute shares a passionate commitment to our mission to end ALS.

Board of Directors

Augie Nieto, Chairman
Augie Nieto, Chairman

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At the age of 19, Augie bought the marketing rights to the Lifecycle exercise bike. Then in 1980, he co-founded Lifecycle, Inc., and over the next 20 years, the company, now called Life Fitness, Inc., repeatedly multiplied in size under his leadership and grew to be the largest commercial manufacturer of fitness equipment in the world. Augie also serves as chairman of Octane Fitness, and as an operating advisor to North Castle Partners. He is on the boards of several companies, including Grand Expeditions and Quest Software. The Orange County, California, native earned a degree in economics with an emphasis in financial accounting from Claremont McKenna College in Claremont, California. In March 2005, Augie was diagnosed with amyotrophic lateral sclerosis, more commonly known as Lou Gehrig's disease. Drawing strength from his family, friends and a flood of supportive e-mails, Augie maintains a positive attitude and continues to lead an active life.
Click to send email to: Steven Perrin, Ph.D.
Steven Perrin, Ph.D.
President, Chief Executive Officer, Chief Scientific Officer and Vice Chairman

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Dr. Steven Perrin is currently the Chief Executive Officer and Chief Scientific Officer at the ALS Therapy Development Institute (ALS TDI) in Cambridge, MA. He earned his Ph.D. at Boston University Medical Center studying the transcriptional regulation of genes during adipocyte and myocyte differentiation. Steven moved into the pharmaceutical industry in 1997 holding positions at the Hoechst-Ariad Genomics Center, Aventis Pharmaceuticals and more recently as Director of Molecular Profiling at Biogen Idec. Steven joined ALS TDI in 2007 as part of historical collaboration between the Muscular Dystrophy Association, Augie's Quest and ALS TDI to develop effective therapeutics for ALS patients. Since joining ALS TDI Steven has spearheaded the development of computational biology capabilities and information management systems to more clearly understand the molecular mechanisms associated with disease onset and progression in neurodegenerative diseases. He has expanded ALS TDI's drug screening program to include expertise in the generation and assessment of gene therapy vectors and protein biologics in preclinical models of neurodegeneration. He has developed a business plan to facilitate pharmaceutical partnerships for rapid clinical development and commercialization of promising targets for ALS patients. Steven is a frequent participant in international conferences in computational biology, genomics, drug development, and neurodegeneration.
Stan Appel, M.D.
Stan Appel, M.D.

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Dr. Appel is The Peggy and Gary Edwards Distinguished Endowed Chair for the Treatment and Research of ALS, Department of Neurology, Neurological Institute, The Methodist Hospital as well as a Professor of Neurology at Weill Medical College of Cornell University and a Professor of Biochemistry and Molecular Physiology at Baylor College of Medicine. He was previously Chair of the Department of Neurology at Baylor College of Medicine as well as Chief of Neurology and the James B. Duke Professor of Medicine at Duke University Medical Center. Dr. Appel is a native of Massachusetts and received his Bachelor Degree at Harvard University and his Medical Degree from Columbia College of Physicians and Surgeons. He is the Director of the MDA/ALS Research and Clinical Center at the Methodist Neurological Institute, and past Director of the National Institute of Aging Alzheimer's Disease Research Center. He has received a number of awards for his accomplishments in Neurology and Biochemistry, including the Gold Medal Award in 1997 from Columbia College of Physicians and Surgeons; the Sheila Essey Award in 2003 from the American Academy of Neurology, has been elected a Fellow of the American Association for the Advancement of Science in 2003, was awarded the Baylor College of Medicine Alumni Association's "Distinguished Faculty Award" in 2004, the MDA's Wings Over Wall Street Diamond Award in 2004, the Texas Neurological Society Lifetime Achievement Award in 2005 and the Forbes Norris Award for "compassion and love for humanity in research and treatment in patients with ALS" from the International Alliance of ALS/MND Associations in 2005.
Alexander Cappello
Alexander Cappello

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The Chairman and CEO of the Cappello Group, Inc., a boutique merchant banking company. He has over twenty years experience in all aspects of corporate finance, investment banking, merchant banking and venture capital both in the U.S. and overseas. He has acquired control of and been the financial advisor to numerous public and private companies in transactions ranging from $10 million to $20 billion. Mr. Cappello is currently, or was previously, a member of the numerous boards of directors ranging from large corporations to academic and research institutes. The following is only a partial list of Mr. Cappello's board membership; YPO International, USC Board of Trustees, RAND Corporation, Inter-Tel (NASDAQ), Geothermal Resources International (AMEX; Chairman), CytRx Corporation (NASDAQ), Advanced Biotherapy, Inc. (OTC; Chairman), Australian Cancer Technology Limited (ASX – Sydney Australia), Catholic Big Brothers of Los Angeles (Chairman, 2002), Getty Institute and The Joffrey Foundation. Cappello received a Bachelor of Science degree, with honors, from the Marshall School of Business at the University of Southern California in 1977, including recognition as an "Order of the Palm" scholar. He was later awarded an Honorary Doctorate of Humanities from Goodwin College in Stanford, Connecticut. Mr. Cappello has been a guest lecturer at the USC, UCLA and Harvard Business Schools as well as numerous YPO, WPO, YEO and CEO International Universities. He has been quoted in the Wall Street Journal, BusinessWeek, FORBES, Dow Jones, the Los Angeles Times and the New York Times. He is also a contributing author to the recently published book, The New Investor Relations (Bloomberg PRESS). A California-native, Mr. Cappello has lived in Bakersfield, Los Angeles, New York, London and Geneva, Switzerland.
Jennifer Gore Dwyer
Jennifer Gore Dwyer

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Jennifer Gore Dwyer is the owner of St. George Marine. The family-run company was established in 1986 by Jenny and her husband Pat. After her beloved husband passed away from ALS in June 2013, Jenny became sole owner and president of St. George Marine, working with her children Sean and Brenna to continue to run and grow the family business. The company owns two vessels. The F/V Jennifer A fishes crab in Alaska's Bering Sea, and in summer works with its sister ship, the F/V Brenna A, purchasing salmon on behalf of seafood processors in various parts of Alaska.

Jenny and Pat built their company from the ground up, working together on Alaska's fishing grounds and becoming involved in fisheries politics. Together, they lobbied state and federal officials on issues related to the Alaska seafood industry. In 2005, when Pat was diagnosed with ALS, the partnership built to lobby government on fish issues became a partnership working to live with ALS.

Through that partnership, Jenny became a committed advocate for the ALS cause. She started out with her local ALS chapter, raising over $100,000 to benefit PALS in the Pacific Northwest area. Jenny's involvement expanded to the national level. She and her family worked extensively behind the scenes in Washington, D.C. to ensure passage of the ALS Registry, which was signed into law by President George W. Bush in 2008. At the same time, recognizing the need for innovative research funding and federal funding, Jenny became a vocal supporter of ALS TDI. She established the first National YFALS Corntoss Tournament in Seattle. Jenny solicited sponsors, donors and participants from the family's significant network in the region. In 2013 the Seattle Corntoss event raised $55,000 for ALS drug development programs at ALS TDI.

On a national level, Jenny has made several trips to Capitol Hill in Washington, D.C. on behalf of ALS TDI. Jenny and ALS TDI met with ranking members of both the U.S. House and Senate to bring attention to the need for increased federal support for ALS translational drug research. Jenny reached out on the national level for all families living with ALS, including those of the military, who are diagnosed with ALS at a rate twice that of other individuals. In February of 2013, Jenny's advocacy went to the White House. She wrote directly to President Obama outlining the dismal statistics and the lack of research funding for this insidious disease. Her letter was so compelling that it made its way to President Obama's desk, and the President sent a hand written note to her and Pat. The president said he would look for ways to support "ALS specifically." Jenny is determined to continue reaching out to Washington, D.C. and the White House on behalf of ALS TDI, to ensure there is recognition and continued translational research funding for ALS, before more families are confronted with the life decisions that face all people with ALS.

Steve Fowler, Board Member Emeritus
Steve Fowler, Board Member Emeritus

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Steve was diagnosed with ALS in 1997. An accomplished musician and composer, he was, at the time of his diagnosis, orchestrating and playing music for major motion pictures including The Lion King, A League of Their Own, Face Off, The Mask, and many others. He has served as musical director for the Grammy winning Brian Setzer Orchestra, published two ballets, many jazz tunes, a book of flute music, and his original poetry. Within months of his diagnosis with ALS, Steve became unable to play the flute and saxophone, but has started his third solo CD in collaboration with his younger brother, Ed. Without the ability for musical expression, Steve has redirected his creative energies toward studying and theorizing around the etiology of ALS. Steve has been a key activist and powerful advocate for patients becoming involved in the research and development of concrete therapies to treat ALS.
James Allen Heywood
James Allen Heywood

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Faced with his 29 year old brother Stephen's diagnosis of ALS in 1998, Jamie founded ALS TDI, the world's first nonprofit biotechnology company, and applied his engineering and management skills to dramatically accelerate ALS research. ALS TDI broke new ground on many fronts and has become widely recognized as one of the most promising and innovative research organizations. Under Jamie's leadership, ALS TDI implemented an industrialized therapeutic validation process and built one of the world's leading ALS drug discovery programs. ALS TDI was the first organization to run an open research program, posting in real time the results of its studies for patients, doctors, and the research community. It also pioneered a new model for engaging patients and families in fundraising and actively involving them in ALS research. Over 100 families have joined with Jamie, Stephen and the Heywood's to fund these innovative efforts. ALS TDI has raised tens of millions of dollars through its philanthropic, corporate, and government programs, culminating in the historic discovery partnership in 2007 with Augie's Quest and the Muscular Dystrophy Association. Jamie is the Chairman and co-founder of PatientsLikeMe the worlds leading patient information website with in depth information on treatments, symptoms, and real world information on managing life changing diseases. An MIT Engineer, he is an active investor and advisor to startups, companies and non profits working improve the way in which biomedical research is conducted. Jamie's work has been profiled in the New Yorker, 60 Minutes, Pulitzer Prize winner Jonathan Wiener's book, His Brothers Keeper, and in the Sundance award winning documentary So Much So Fast.
John Heywood, Ph.D., Sc.D.
John Heywood, Ph.D., Sc.D.

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John is the Sun Jae Professor of Mechanical Engineering and Director of the Sloan Automotive Lab at MIT. He has made major contributions to the fields of transportation, energy and air pollution, and consults to both industry and the government on technical and policy issues. His book, Internal Engine Fundamentals, is regarded as the definitive work in the field. He was elected to the National Academy of Engineering in 1998, and the American Academy of Arts and Sciences. Professor Heywood has an honorary Doctor of Technology degree from Chalmers University of Technology in Sweden, and an honorary Doctor of Science degree from City University in London.
Spiros Jamas, Sc.D.
Spiros Jamas, Sc.D.

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Spiros Jamas was the President and CEO and co-founder of Tempero Pharmaceuticals, a GSK-funded company focusing on T-cell mediated diseases. Prior to joining Tempero, Dr. Jamas was the Global Healthcare Analyst for State Street Global Advisors (SSGA), a global institutional asset management firm. Dr. Jamas has over 20 years senior management experience in the biopharmaceutical industry serving as CEO and/or founder of several biotech companies (Tempero, Enanta Pharmaceuticals, Alpha-Beta Technology, Inc.). In these capacities he was responsible for raising over $280M in funding through venture capital, public and debt offerings and led R&D programs from discovery research to advanced clinical development. Dr. Jamas obtained a Doctor of Science in Biotechnology from M.I.T. in 1987, a M.Sc. also from M.I.T. in 1983 and a B.Sc. in Chemical Engineering from UMIST, England.
Keith P. Melanson, Governance & Nominating Committee Chair
Keith P. Melanson, Governance & Nominating Committee Chair

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Keith is a Director at Credit Suisse, Private Banking USA. Prior to that Mr. Melanson was a Managing Director at J.P. Morgan where he managed fixed income portfolios for banks and insurance companies and covered corporate cash portfolios for several fortune 500 companies. He has been involved in over $3 billion in mortgage and agency transactions in the past five years. Previously, Keith worked at Griffin, Kubik, Stephens & Thompson Investment Bank. He began his career at Monarch Capital Corporation as a Marketing Director of Variable Annuity and Life products, after working as a Corporate cash management analyst. Keith graduated with a BS in Finance and Investments from Babson College. Keith is the Chair of the Governance & Nominating Committee of the Board of Directors at ALS TDI.
Leslie Michelson
Leslie Michelson

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Leslie brings strong leadership and more than 20 years of healthcare experience. Mr. Michelson has served as a founder, CEO, investor, advisor and/or director for a portfolio of entrepreneurial healthcare, technology and real estate companies. After practicing law in Washington, D.C., Leslie served as Special Assistant to the General Counsel of the U.S. Department of Health and Human Services during the Carter Administration. He then joined a private equity investment firm focused on healthcare and real estate investments. In 1988, he founded and became Chairman and CEO of Value Health Services, one of the first and most profitable disease management companies. He was the co-founder and Chairman, and co-CEO of Protocare, a provider of clinical trial site and disease management services to the biotechnology and pharmaceutical industries. In 1999, Mr. Michelson co-founded and served as CEO of Acurian, which recruits patients and physicians for clinical trials. Mr. Michelson serves on the Board of Directors, and is the Audit Committee Chair, of Catellus, a $3 billion NYSE industrial REIT and is a member of the Board of Directors for Nastech, a NASDAQ-traded biotechnology company focused on innovative drug discovery technology. Mr. Michelson received a B.A. from the John Hopkins University and a J.D. from Yale Law School. He and his wife, Beth, have two daughters and reside in Los Angeles. Leslie is the Vice Chairman of the Board of Directors and serves as Chair of the Audit Committee at ALS TDI.
Theodore Reich, Treasurer and Audit Committee Chair
Theodore Reich, Treasurer and Audit Committee Chair

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ALS TDI's first contact with Ted and his wife, Wendy, was at a San Francisco ALS 101 in October of 2007. The Reich's attended the seminar because their 22 year old son, Corey, who was enrolled at Middlebury College, had recently been diagnosed with ALS. Ted has been a CPA for the past 25+ years in the Bay Area. He formerly worked for Arthur Anderson, and has held his own firm for the past twenty years. Ted is very well connected in many California industries such as logging, farming, grocery chains, and dozens of other industries that his firm supports. In the last three months of 2007 ALS TDI received $43K via the Reich network. In April of 2008 Wendy and Corey visited the lab in Cambridge. In August 2008, with Mike Shannon's coaching, the Reich family generated almost $400K through their first fundraising event (Corey's Crusade). In November of 2008 Corey and Wendy attend the 2008 ALS TDI Leadership Summit. Ted, Wendy, and Jacque Portewig (Wendy's Sister) are ALS TDI Ambassadors. In January of 2009 Ted joined the new ALS TDI Advisory Council. Corey himself is now interested in taking a more active role as a patient-advocate and may be willing to do some public speaking to benefit ALS TDI's outreach. In fact, Corey has joined together with several other young people living with ALS to create the ''Young Faces of ALS'' campaign in 2010 and attended several MLB games to raise awareness of ALS and dollars for research. This year, the Young Faces of ALS campaign launched its first national fundraising initiative, a National Cornhole Challenge Day, which took place on June 18, 2011 and raised $150,000. In addition to fundraising, Ted has provided support via pro bono legal services through one of his many contacts, Darin DeAngeli with Ahrens & DeAngeli in Seattle and Boise. In total, the Reich network has generated just over $1.6 million for research at ALS TDI!
Rob Rodin, Executive Compensation Committee Chair
Rob Rodin, Executive Compensation Committee Chair

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Rob is the Chairman and CEO of RDN Group; strategic advisors focused on corporate transitions, customer interface, sales and marketing, distribution and supply chain management. (Customers include: GM, GE, US Navy, Avnet, Siemens, Simon and Schuster). Additionally, he serves as Vice Chairman, Executive Director and Chairman of the Investment Committee of CommerceNet which researches and funds open platform, interoperable business services to advance commerce. Mr. Rodin served for over 10 years as CEO and President of Marshall Industries (NYSE: MI) a global, industrial, electronics distributor and supply chain management company with over $2 billion in sales. Information Week Magazine highlighted Marshall Industries as the "World's Number One Company in the Use of Technology", and CIO Magazine recognized Mr. Rodin as one of the "Top 100 Leaders for the New Millennium". UCLA presented Mr. Rodin with the "Information Systems Award for System Leadership" and the University of Connecticut presented him with the "Distinguished Alumni Award" and elected him to the "University Hall of Fame". Mr. Rodin's best selling book, "Free, Perfect and Now: Connecting to the Three Insatiable Customer Demands", chronicles the radical transformation of Marshall Industries. The changes he led have been taught as case studies at Harvard Business School, Columbia University, USC, MIT, and Stanford University. Mr. Rodin's Board activities include: the Board of Directors of Napster (NAPS)(formally Roxio) as Chairman of the Compensation Committee and a Member of the Audit Committee, Vice Chairman of the Board of Directors of CommerceNet, Board Member / Director of supplyFX, Board Member /Director and Member of the Governance and Nominating Committee of SM&A (NASDQ: WINS), Director of Inter-tel (NASDAQ: INTL), Advisory Board of LASEC (Los Angeles Sports and Entertainment Commission) Advisory Board of Electronics Supply & Manufacturing Magazine (CMP Publications), on the planning committee for Harvard and Stanford Presidents Seminars (YPO) and on University of Connecticut's School of Business Board of Advisors (Executive Council and Strategic Development Committee) as well as several private company advisory boards. Mr. Rodin formerly served on the Advisory Board of Distribution at USC, the Board of Directors of RosettaNet, as a Trustee of the W. Edwards Deming Institute, and President of NEDA's (National Electronic Distribution Association) Education Foundation. Rob is the Chair of the Executive Compensation Committee of the Board of Directors at ALS TDI.
Robert Sepucha
Robert Sepucha

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Robert Sepucha is Senior Vice President, Policy and Business Development for Fresenius Medical Care North America, the nation's largest integrated provider of clinical services and products for persons undergoing treatment for kidney failure, including chronic renal dialysis. Prior to joining Fresenius, Robert served as general counsel for the Massachusetts Life Science Center, as well as chief of staff and senior policy advisor to Congressman Harold Ford, Jr. (D-TN), where he was the Congressman's primary advisor on legislative strategy, political activities, media strategy and legal issues. Robert also practiced law for nearly a decade at Sonnenschein Nath & Rosenthal and Gunderson Dettmer, where he represented venture capitalists and emerging growth technology companies across the country. Robert received a J.D. from the University of Michigan and a B.S. in government and economics from Dartmouth College.
Michael M. Smith
Michael M. Smith

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Michael M. Smith is president of B.T. Loftus Ranches, Inc., a family-owned farming and orchard operation in Washington's Yakima Valley. He is also founder, director and former president of Yakima Chief, Inc., an international hops sales organization. Smith and his wife, Cheryl Hanses Smith, have been supporters of ALS-focused organizations for many years, funding both patient services and research efforts. The Hanses family has the inherited form of ALS, and there are three family members currently battling the disease. Recently, they worked with ALS TDI to develop the "Ales for ALS" program, a unique craft brewery-based fundraising initiative created to fund drug development at ALS TDI.
Lynne Nieto
Lynne Nieto

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After graduating from University of Colorado with a BA in Accounting, Lynne joined her family real estate development and management firm in 1980. Her original involvement was with the single family home building division of the business, building upwards of 200 homes per year. She later became president of ‘Classic Management' – the company's property management division, and grew its portfolio of apartments from 800 to 1,200 units, while also overseeing the commercial and office building portfolio. She retired from the firm in 2000. Lynne continues to be involved in real estate investing and served on the board of CT Realty, a California real estate investment company. She served as Co-Chair of the ALS Division of the Muscular Dystrophy Association from 2006 until “Augie's Quest” left the ranks of MDA and became part of ALS Therapy Development Institute in 2014. Lynne co founded Augie's Quest with her husband Augie and has played a pivotal role in its success through her vision, leadership and focus on the bottom line where her accounting background has been key. Among other things, Lynne created the concept for the BASH fundraiser, Augie's Quests most successful single day event, and she represents Augie as the “voice of Augie's Quest,” at all major events and with the media. Lynne lives in Southern California with her husband Augie and their dog, Hazel. They have four adult children, and two amazing grandchildren.
Eric Craven
Eric Craven

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Eric Craven has thirty years of professional experience with ten years in Engineering and twenty years in Human Resources – Compensation and Benefits. Eric began his career in Northrop Grumman's Engineering organization and is currently PepsiCo's Senior Vice President of Global Compensation and Benefits. Eric was diagnosed with ALS in April 2013 and is retiring early from PepsiCo to spend time with his family and to assist the TDI team in any way necessary to develop a cure. Eric received a Bachelor of Science, with honors, in Physics from UCLA, Masters of Science in Engineering Management from USC and an MBA from USC's Marshall School of Business. Eric's wife, Claire, is a graduate of LSU and formerly served as a Vice President of several national Advertising firms and currently partners along-side Eric in his work with TDI. Eric is a native of California and Claire of Louisiana, they currently reside in Connecticut with their three children David, Amanda and Elizabeth.
Kent Bransford, M.D.
Kent Bransford, M.D.

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Kent's interest in ALS dates from the time of his brother-in-law, Augie Nieto's diagnosis. Kent received his Bachelor's degree in biochemistry from the University of California, Berkeley and his medical degree from Columbia University's College of Physicians and Surgeons. He completed his specialty training in internal medicine, hematology, and medical oncology at Cedars-Sinai Medical Center and USC's Norris Cancer Center in Los Angeles. Kent practiced clinical subspecialty medicine for nearly 30 years, and continues seeing patients pro-bono at the local free clinic. He served for over a decade on the board of directors of Physicians for Social Responsibility. In addition to his work on PSR's executive committee, he was national president in 2006. He currently lives on the Monterey Peninsula on California's central coast.

Executive Team

Click to send email to: Steven Perrin, Ph.D.
Steven Perrin, Ph.D.
President, Chief Executive Officer, Chief Scientific Officer and Vice Chairman

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Dr. Steven Perrin is currently the Chief Executive Officer and Chief Scientific Officer at the ALS Therapy Development Institute (ALS TDI) in Cambridge, MA. He earned his Ph.D. at Boston University Medical Center studying the transcriptional regulation of genes during adipocyte and myocyte differentiation. Steven moved into the pharmaceutical industry in 1997 holding positions at the Hoechst-Ariad Genomics Center, Aventis Pharmaceuticals and more recently as Director of Molecular Profiling at Biogen Idec. Steven joined ALS TDI in 2007 as part of historical collaboration between the Muscular Dystrophy Association, Augie's Quest and ALS TDI to develop effective therapeutics for ALS patients. Since joining ALS TDI Steven has spearheaded the development of computational biology capabilities and information management systems to more clearly understand the molecular mechanisms associated with disease onset and progression in neurodegenerative diseases. He has expanded ALS TDI's drug screening program to include expertise in the generation and assessment of gene therapy vectors and protein biologics in preclinical models of neurodegeneration. He has developed a business plan to facilitate pharmaceutical partnerships for rapid clinical development and commercialization of promising targets for ALS patients. Steven is a frequent participant in international conferences in computational biology, genomics, drug development, and neurodegeneration.
Click to send email to: Bashar Al-Nakhala
Bashar Al-Nakhala
Vice President of Information Technology

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Bashar Joined ALS TDI in 2005 initially as the Director of Bioinformatics. Today as Vice President of Information Technology, he oversees the organization technical infrastructure and internal technology systems. Bashar has over 22 years of experience in software development, information systems, and managing cross-functional teams. Prior to joining ALS TDI, Bashar was the Director of Development at IMN INC, a leading e-marking global company. There he led the engineering team that developed the company's (SaaS) e-communication and enterprise delivery systems. Prior to IMN, he was a technology advisor and a consultant to various early start-ups, large companies such as EMD Serono, and non-profits such as Youth Build USA, and Urban League of Eastern Massachusetts. Earlier in his career, Bashar spent several years working at Microsoft and Amazon.com, where he was involved in developing some of their earlier products. Bashar holds an MBA from Northeastern University, and a Software Engineering and Computer Science degrees from the University of Washington and Wentworth Institute of Technology respectively.
Click to send email to: Al Gill, Ph.D.
Al Gill, Ph.D.
Vice President of Research

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Al is an experienced pharmacologist/physiologist with a thorough understanding of practical investigation in complex in vivo animal systems. He came to ALS TDI after a one-year immersion in Huntington's disease drug discovery as the Director and Head of Pharmacology at EnVivo Pharmaceuticals, a biotechnology company concentrating on neurodegenerative diseases. Prior to EnVivo he worked for 13 years in Biogen and Biogen Idec's drug discovery research division where he instituted Biogen's Pharmacology Department. These efforts led to drug candidates that were the basis for collaboration with Merck and Co. for their clinical development, and to small molecule and protein potential therapeutics selected for development by Biogen Idec itself. Prior to working for Biogen, Alan worked for 12 years with Johnson & Johnson's worldwide drug discovery research division. He received his Ph.D. in Pharmacology from the M.S. Hershey Medical Center of the Pennsylvania State University, and his Master's degree in Physiology and Bachelor's degree in Biology from the University of San Francisco.
Click to send email to: Robert Goldstein
Robert Goldstein
Vice President of Marketing, Communications & Development

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Since joining the Institute in 2004, Rob has played a crucial role in the creation and execution of the Institute's development, communication, and marketing strategies. Over the last decade, he has passionately worked with hundreds of ALS patients and families in the US and abroad to raise funds through networking and events to advance potential treatments for ALS toward the clinic. Rob regularly represents the Institute in business development and philanthropic development capacities and meets with both venture capitalists and venture philanthropists. He is the host of the Institute's monthly scientific webinar series, moderator of its online patient forum, and emcee of its annual Leadership Summit. While at ALS TDI, he has also helped to launch several major fundraising and awareness campaigns, such as the Driving4Life campaign (now ALS TDI Golf), the 4ALS Awareness campaign (with Major League Baseball) and the Young Faces of ALS campaign. Prior, Rob worked professionally in both television (WMUR) and radio (WMEB), gaining production and on-air experience, preparing him to help train staff and ALS advocates in media relations. He earned an undergraduate degree in Mass Communications from the University of Maine and graduate degree in Public Affairs from the McCormack Graduate School for Policy Studies of the University of Massachusetts in Boston.
Click to send email to: Shannon Shryne
Shannon Shryne
Vice President, Development

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Shannon's strong track record of more than 20 years of fundraising and relationship building enabled her to steadily advance through the Muscular Dystrophy Association's management to her final role as their Vice President of Business Development. Her expertise in cultivating and recruiting corporate partners and donors, budgeting, special event planning and program development was key to creating and maintaining multiple national corporate relationships resulting in tens of millions of dollars. Shannon recruited Lynne and Augie Nieto to partner with MDA in 2005 to create Augie's Quest, resulting in a network of ALS special events that have cumulatively raised over $40 million and are now being coordinated under the ALS TDI umbrella. Shannon serves on the Advisory Boards at the Kevin Turner Foundation and the California Fire Fighter Foundation, and is a board member of Free the Music USA Foundation. She received her BS from the University of Colorado in Boulder. She lives in Denver with her family.

Research Team

Click to send email to: Fernando Vieira, M.D.
Fernando Vieira, M.D.
Director of Research Operations
Director of In Vivo Operations

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Dr. Vieira has worked at ALS TDI since 2001 and has deep ties to the ALS/MND community. With nearly a decade in ALS research, he has served in many capacities advancing scientific efforts at the Institute. He has been integral to the design, execution, and oversight of over 1,000 preclinical studies, the majority of which directly relate to amyotrophic lateral sclerosis. He worked closely with former ALS TDI President Sean F. Scott to help develop the gold standard for preclinical survival testing using the G93A-SOD1 mouse model. Since presenting the study design guidelines to the international ALS research community at meetings and symposiums, much of the ALS research community has adopted them. Additionally, he has designed and validated a novel surgical method for constant infusion of therapeutics to the intrathecal space of mice. Currently, he manages the scientific project portfolio at ALS TDI, including both therapeutic and technology development projects. His previous research experiences include work in the University of Florida Condensed Matter Physics Lab and the University of Florida Vascular Surgery Lab. A native of Massachusetts, Vieira received a Bachelors Degree in biological engineering at the University of Florida and his medical degree from Harvard Medical School.
Click to send email to: Ken Thompson
Ken Thompson
Director of Lab Operations

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In his unique role at ALS TDI, Ken ensures the ongoing success of ALS TDI's pivotal mouse studies program. Ken manages all laboratory functions including staffing, working with breeders and ensuring ALS TDI maintains the highest operational and process standards. In addition, Ken manages mouse studies, initiates and oversees all studies in the mouse research data system (LIMS), does formulations and creates daily drug solutions. A close friend of ALS patient Stephen Heywood, Ken discontinued his work in marine biology at the University of Alaska in 2000 to join ALS TDI as a formulations scientist. Ken's previous research experience includes the molecular examination of starvation markers in larval stage cod at the University of Rhode Island. Ken also serves as an officer of ALS TDI as the Assistant Secretary of the Corporation.
Click to send email to: Vladimir Morozov, Ph.D.
Vladimir Morozov, Ph.D.
Senior Scientist / Computational Biology

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Vladimir analyzes data generated by high-throughput genomic technologies in order to discover the mechanism of ALS. He assists other ALS TDI scientists in accessing and statistical interpretation of the experimental data. Vladimir has 10 years of industrial experience in integration and analyzing biomedical data. He occupied various senior level scientific positions at LION Bioscience and ALTANA Research Institute. He received his Ph.D. in Chemical Enzymology from Moscow State University, Russia.
Click to send email to: Jerry De Zutter, Ph.D.
Jerry De Zutter, Ph.D.
Senior Scientist

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Jerry manages and contributes to the productivity of ALS TDI's in vitro, RNA and cell-based assay validation group. Jerry's team is one of three that compose the discovery and pre-clinical research pipeline at ALS TDI. The group is responsible for the upstream activities of reagent and therapeutic validation, mostly achieved by designing and performing in vitro, cell-based assays. His team is also charged with downstream analysis of samples collected from our pre-clinical studies and data generation from the same. To accomplish the upstream cell-based validation activities, the group uses traditional cell biology techniques. For validation and downstream data generation and analyses, the team is responsible for operating automated liquid handling, real-time quantitative PCR and high throughput (96-peg) gene expression profiling technologies, all integrated into our custom-built LIMS platform. Jerry coordinates the group's integration in the discovery research pipeline, manages the day-to-day activities of the team's scientists, performs experiments as needed and contributes intellectually, in conjunction with other senior staff, to determining the direction of the ALS TDI's research program. Prior to joining ALS TDI, Jerry spent four years at Wyeth Pharmaceuticals gaining substantial experience in drug discovery. He earned his doctorate in molecular medicine, specializing in neurodegeneration research, at the University of Massachusetts Medical School.
Click to send email to: Monica Wang
Monica Wang
Scientist I

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Formerly a member of Biogen Idec's ALS discovery program, Monica has 18 years of basic research experience in stem cell research and animal surgeries in diabetes and Parkinson's disease. She has spent five years focusing on HIV research at the New England Medical Center Hospital. She has extensive experience in the Cambridge biotechnology community, having held a senior position at Curis, where she filed successful patents. Monica is an expert in advanced confocal microscopy techniques, fluorescence, in-situ hybridization, immunohistochemistry, and cutting edge 3D histology using polymerized tissue sections. Her novel techniques include quantification of motor neurons, extraction of complex nerve assemblies, and imaging of ALS neuromuscular junctions. She received an undergraduate degree in microbiology from the University of Massachusetts, and is pursuing a graduate degree in biology through the Harvard Extension School.
Click to send email to: Ricky Sanchez
Ricky Sanchez
Senior Associate Scientist

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Ricky brings to Institute more than twenty years experience in research and industrial histopathology. Previously, he spent five years at Biogen Idec, Inc. as a histopathology supervisor. He also has over fifteen years research experience in nerve regeneration, inflammatory diseases, and cancer biology while working at Curis, and M.D. Anderson Cancer Center. Ricky received his BS in Biology and Histotechnology from Kean University of New Jersey. He and his family live in Andover, MA.
Click to send email to: Beth Levine
Beth Levine
Senior Associate Scientist, Project Management

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Beth brings years of pharmaceutical and biotechnology experience to ALS TDI. She manages the acquisition of patient tissues from clinics around the country for study at the Institute, and as part of the Project Management team, she has made projects run at maximum efficiency to get ALS TDI to its goal of finding a treatment for ALS as fast as possible. Beth participates in many ALS fundraising events including riding in the Tri-State Trek and running in The Cure is Coming 5K.
Click to send email to: Cindy Gill
Cindy Gill
Senior Associate Scientist

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Cindy received an undergraduate degree in Biology from Simmons College and spent 15 years in Research at biotechnology companies, including 9 years at Biogen. She was involved primarily in the discovery and testing of Immunology-based therapeutics, and has an extensive background in monoclonal antibody production and the in-vitro/in-vivo characterization of potential drugs. She took a break from biotech to nearly complete a second degree from Simmons in Nursing and to be home with her two children, Anna and Joe. At ALS TDI, Cindy works in the Pharmacology group to help evaluate in-vivo drug effects in the G93A model.
Click to send email to: Shawn M. Sullivan
Shawn M. Sullivan
Lead Application Developer

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Joining ALS TDI in 2006, Shawn's role is to help build and maintain applications. Specifically, Shawn is working to expand the Web functionality of the ALS TDI drug discovery pipeline, the process database system we use to identify, evaluate, select and rank candidate drugs for testing. Shawn spent five years as a software developer at ImakeNews, where he helped clients such as Cisco Systems, Progress Software and Parametric Technology develop custom newsletters. He also has experience building AutoCAD import tools, and in QA (quality assurance.) Shawn attended Wentworth Institute of Technology.
Click to send email to: Andy Moreno
Andy Moreno
Research Associate II

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Andy joined ALS TDI's in vivo team in 2002. Formerly an assistant in an animal facility at Harvard University, Andy's duties include administering drugs to ALS mice, scoring neurological impairment, performing surgery and collecting tissue. He manages four to six studies simultaneously, collecting and entering data into the LIMS database. In time, he will expand his surgical skills and perform intrathecal surgeries. Andy studied political science for two years at Boston College.
Click to send email to: Josh Kidd
Josh Kidd
Research Associate I

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Josh is a Massachusetts native with 7 years experience working at ALS TDI as a Research Associate. Before coming to the Institute, Josh attended Minuteman Vocational Technical High School in Lexington, MA, where he earned a certificate in Graphic Design. Josh's family history with Huntington's Disease has given him a unique perspective and drives his desire to be a part of the effort to treat and cure devastating neurological diseases such as ALS. Since working at ALS TDI, he has earned his ALAT certification and is currently working towards a bachelors degree in biology at Northeastern University in Boston. Other than science, Josh is an avid animal lover and enjoys all things music and art. He currently calls Somerville his home.
Click to send email to: Matt Ferola
Matt Ferola
Animal Technician II

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Having lost his grandmother's cousin to ALS, Matt has been an inspired member of the animal care team at ALS TDI since 2003. His primary goal is to maintain the facility and provide clean and healthy environments for all of the mice involved in research studies. Matt grew up in Somerville, Massachusetts and pursued a certificate in graphic communications before joining the research staff at ALS TDI.
Click to send email to: Carlos Maya
Carlos Maya
Animal Technician I

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Carlos has worked with animals since he was a young boy growing up on a farm in Colombia. His father was a veterinarian and taught Carlos how to care for the diverse animals on their farm. Carlos moved to the United States is 1991 and resides in Chelsea, MA, with his wife Juliana, and their three young children, Rafael, Julian and Carlos Jr.
Click to send email to: Qinggong Ping
Qinggong Ping
Scientist I

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Ping is a highly collaborative and self-motivated researcher with four years of research training at Harvard Medical School as well as six years of pharmaceutical industry experience in drug discovery and technology development projects at Sanofi-aventis. He has strong research experience in cell and molecular biology, biochemistry and biomedicine, with extensive technical skills in drug target identification and validation and in biomarker development with various cell-based assays and MSD immunoassays. His research experience also includes immunohistochemistry and confocal microscopy for human samples and animal studies. Ping joined the research team at ALS TDI in 2010, and lives in Wellesley, MA.
Click to send email to: Bingbing Jiang, Ph.D.
Bingbing Jiang, Ph.D.
Senior Scientist

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Dr. Jiang has over ten years of research experience in Boston University and three years in Harvard Medical School, focusing on revealing cellular and molecular mechanisms involved in regulating inflammation, cell survival, tissue injury, remodeling, and fibrosis, and identifying therapeutic targets against disease development and progression. He has strong background in signal transduction and inflammation research, with extensive research skills in biochemistry, cell and molecular biology, vascular biology, and immunotechnology. He received his Ph.D. in Medical Science from Osaka University, Japan, and pursued his post-doctoral study in Biochemistry and Vascular Biology at Boston University. Dr. Jiang joined the research team at ALS TDI in 2011.
Click to send email to: Theo Hatzipetros, Ph.D.
Theo Hatzipetros, Ph.D.
Scientist II

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Dr. Theo Hatzipetros is an in vivo pharmacologist who specializes in the field of neurodegeneration. He has extensive experience in animal research including the development of animal models of neurological diseases, PK/PD, toxicity and drug efficacy studies. Prior to joining ALS TDI, Theo worked on drug discovery for the treatment of Parkinson's Disease at FoldRx Pharmaceuticals. At ALS TDI, Theo's efforts are focused on the development of novel animal models of ALS and in evaluating therapeutic strategies for the treatment of the disease. Theo, originally from Cyprus, received his doctorate in pharmacology from Boston University School of Medicine for his thesis work on the neurotoxic effects of the psychostimulant methamphetamine.
Click to send email to: Valerie Tassinari
Valerie Tassinari
Associate Scientist

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Valerie Tassinari is a member of the Research and Development in vivo and project management teams at ALS TDI. She came to Boston from Connecticut in 2009 to attend Boston University. Valerie started at ALS TDI in 2010 as a project management intern and, after earning her bachelor’s degree in marine science in 2012, joined the in vivo team full-time. Her responsibilities include molecular biology techniques such as quantitative RT-PCR with a focus on DNA and RNA extraction and gene expression. Specifically, her efforts focus on quantitative gene copy number analyses to facilitate high quality and interpretable in vivo target discovery and pharmacology studies. In addition to her molecular biology responsibilities, Valerie works within the project management team to ensure the proper storage and archival of research reagents.
Click to send email to: Matvey Lukashev, Ph.D.
Matvey Lukashev, Ph.D.
Director, Translational Research

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Dr. Lukashev came to ALS TDI in 2013 with over 20 years of postgraduate research experience and 14 years of biotechnology industry experience. He has supported and led therapeutic discovery and development programs across all stages of drug development in therapeutic areas of neurology, oncology, immunology and fibrosis . His leadership of the research effort supporting clinical development of Tecfidera, an oral small molecule therapeutic recently approved by the FDA for treatment of multiple sclerosis was recognized by an Outstanding Scientific Achievement Award from Biogen Idec, Inc. Dr. Lukashev received a Ph.D. from the Russian Academy of Medical Sciences, and postdoctoral training at Johns Hopkins and University of California, San Francisco.
Click to send email to: Jessie St. Martin
Jessie St. Martin
Associate Scientist

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Jessie is a neuroscientist with 10 years of research experience. She received her Master's of Science from Brandeis University, where she studied the development of neural circuits. Prior to attending graduate school, Jessie worked in drug discovery at FoldRx Pharmaceuticals, helping to develop animal models of Parkinson's disease. At ALS TDI, Jessie works with inducible pluripotent stem cells from ALS patients to screen potential therapeutics. Jessie lives in Jamaica Plain with her son Lucas and her husband Ben.
Click to send email to: Alexandra Tsolias
Alexandra Tsolias
Research Associate

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Alexandra is a recent graduate from Northeastern University where she received her bachelor's degree in Biology. She has previously worked as a member of various multidisciplinary teams at several biotechnology companies, and most recently, at an academic lab at Beth Israel Deaconess Medical Center. She has joined ALS TDI as a member of the translational research team. In her free time, Alexandra enjoys running, bikram yoga, and taking part in fundraising events.
Click to send email to: James Phelan
James Phelan
Research Associate, In Vivo

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James recently graduated with a Bachelors of Science in Physical and Comparative Biology from Quinnipiac University, graduating Magna cum Laude. His areas of particular interest were human Anatomy and Physiology, Pathogenic Microbiology and Biochemistry. His previous lab work involved studying horizontal gene transfer in Borrelia burgdorferi, the causative agent of Lyme Disease. James will be working with the In Vivo team employing a variety of assays to reveal the pathology in human ALS samples and in the G93A mouse model. James is also currently a certified Massachusetts Emergency Technician residing in Quincy, Massachusetts. In his personal life, he enjoys hanging with friends and is an avid rugby player.
Click to send email to: Michele M. Maxwell, Ph.D.
Michele M. Maxwell, Ph.D.
Principal Scientist, Translational Research

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Dr. Maxwell is a cellular and molecular neuroscientist who came to ALS TDI in 2014 after twelve years working in ALS research and neuroscience drug discovery at Massachusetts General Hospital and Harvard Medical School. At the MGH, her laboratory focused on developing cell-based and animal models to probe molecular mechanisms of neurodegeneration in ALS and other neurological disorders, and on genetic and pharmacological validation of potential therapeutic targets using these models. Dr. Maxwell's expertise also includes development and validation of cell-based assays for drug screening, process optimization for high-throughput screens, and secondary characterization of hit compounds both in vitro and in vivo. She earned her Ph.D. in Biology from the Massachusetts Institute of Technology and completed postdoctoral training in neurodegenerative disease research at the MGH.
Click to send email to: Yiding Yan
Yiding Yan
Associate Scientist, Discovery Biology

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Yiding has five years of research training at the Biochemistry Lab and Cell Biology Lab at Boston University and Beth Israel Deaconess Medical Center. She spent close to 15 years in biopharmacuetical companies, where she was involved in a broad range of technology for in vitro research. Her previous experience focused on mouse genetics modeling of human disease, inflammation kinase assays, cancer biology cell-based assays, siRNA DMPK study and cell automation. Her specialties include cell assays development and gene construction. Prior to joining the Institute's in 2015, Yiding took a year's break from bio-research and attended the Manu meditation study at The Arlington Center.
Click to send email to: Alan Premasiri
Alan Premasiri
Research Scientist I

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Alan is a recent graduate from Boston University with a degree in Neurobiology, and is applying to medical school for the fall of 2016. At the Institute, he does work pertaining to the ALS-associated gene C9orf72. In his free time, Alan loves music, playing Ultimate Frisbee, and anything science-related.
Click to send email to: Therese Dane
Therese Dane
Research Associate

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Therese is a graduate from the Rochester Institute of Technology with a Bachelor of Science degree in Biology. She has worked and volunteered in numerous labs, including the Wright Bioengineering Lab looking at leukocyte rolling in vitro. Most recently, she worked at the Journal of Visualized Experiments where she was a Peer Review Specialist. She loves to inject science into everyday life, creating science jewelry and baking science-related projects. She joined the Institute as part of the Translational Medicine research group in March 2015 to work with patient samples and patient–derived cells for assay development.
Click to send email to: Alessandro Calo
Alessandro Calo
Research Associate

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No bio available
Click to send email to: Sam Ketchum
Sam Ketchum
Lab Intern

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Darth
Darth
Beckman Coulter BioMek FX

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Beckman Coulter BioMek FX
Yoda
Yoda
Beckman Coulter BioMek FX

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Beckman Coulter BioMek FX
Corey
Corey
Affymetrix GeneTitan

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Affymetrix GeneTitan

Operations & Fundraising Team

Click to send email to: Alicia Grossi
Alicia Grossi
Director of Donor Communications & Stewardship

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Soon after graduating from Quinnipiac University with a degree in Advertising, Alicia began her role as Program Manager at ALS TDI in September 2006. Currently the Northeast Regional Director, Mrs. Grossi provides ALS patients, their family and friends with current research information and the ability to raise funds and awareness for the ALS TDI laboratory. Additionally she plays key roles in the execution of several important fundraising and patient information programs at ALS TDI. Alicia's grandfather died of ALS at age 53, and her family has been dedicated to finding a treatment for ALS ever since. Recently married, Alicia lives with her husband Bryan in Boston. Her favorite activity after work is running near ALS TDI along the Charles River.
Click to send email to: Carol Hamilton
Carol Hamilton
Director of Government Affairs and Foundations

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Carol initially joined ALS TDI in 2005 as a volunteer consultant in our federal funding efforts. She has worked closely with the Department of Defense, the Department of Veterans Affairs, Capitol Hill, and the National Institutes of Health to familiarize government officials with our program, and increase our funding. We are honored to receive federal funding through the Department of Defense in recognition of our nation's veterans' unfortunate elevated incidence of ALS. Carol is also often involved in ALS TDI's work with foundations and major donors. She graduated from Georgetown University's School of Business, and has been active in politics and campaigns most of her life. Prior to joining ALS TDI, Carol was an executive with Saks Fifth Avenue, where she ran a $50 million a year business. Carol lives in Sherborn, and is the proud mother of two teenage girls.
Click to send email to: Lou Kobbs
Lou Kobbs
Development Director

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Lou was first introduced to ALS TDI shortly after his best friend, Fran Delany, was diagnosed with ALS. Soon thereafter, Lou joined the fundraising team at ALS TDI in August 2000. Prior to joining ALS TDI, Lou spent 30 years in the High Tech Industry working for Digital Equipment Corporation, which was bought by Compaq Computer and subsequently acquired by Hewlett Packard. At the time of his retirement from Hewlett, Mr. Kobbs was the Planning and Operations Manager for the New England Customer Business District. In his role as the Southeast Regional Director, Lou attends ALS support groups, helping them understand the state of ALS research and how they can support its acceleration. In his position, Lou is responsible for all ALS TDI awareness campaigns and fundraising efforts across the southeast, from Maryland to the Gulf of Mexico and from the Atlantic Ocean to the western border of Texas. Lou also covers Canada. Over the past 9 years, Lou has worked with dozens of ALS patients and their families to develop events and campaigns which involve entire communities. Lou works out of his home office in Myrtle Beach, S.C. He is married to Loreta, and has 3 children; Chris, Mary Bridget and Ben scattered across the U.S.
Click to send email to: Jessica Sullivan
Jessica Sullivan
Senior Director of Communications

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Jessica joined ALS TDI's Communications Team in May of 2008 after several years of working in tourism and retail. She is responsible for the planning and execution of a comprehensive corporate communications and marketing strategy, as well as maintaining web-based resources that directly provide vital information to ALS patients and their families, like monthly update emails, annual newsletters, and the clinical trial database. Jessica also works to support the major fundraising and awareness campaigns at ALS TDI. She earned an undergraduate degree in European History from Suffolk University and a master's degree in Library Science from Simmons College. She lives in her hometown of Pepperell, Mass. on the New Hampshire border.
Click to send email to: Ben Wakefield
Ben Wakefield
Application Developer

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Previous to joining ALS TDI in 2009, Ben spent six years working in software and web development on an aerospace maintenance & engineering application. Prior to that, he worked for an information technology consulting firm in client/server based technologies for two years. Ben is responsible for maintaining existing web applications and implementing new web strategies for ALS TDI. He currently resides in the Merrimack Valley with his wife and three children. Ben is a graduate of the University of Maine and has a minor in Medieval and Renaissance Studies.
Click to send email to: Clare Reich
Clare Reich
Lead Data Management Analyst

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Clare learned of ALS TDI following the summer of 2007, when her brother, Corey, was diagnosed with ALS. Since Corey's diagnosis, Clare has helped her family run an annual fundraising event in support of ALS TDI under the name ''Corey's Crusade''. She also helped with the San Francisco venue of ALS TDI's first annual Young Faces of ALS Cornhole Challenge. Clare is originally from Piedmont, California, but she attended Colby College in Waterville, Maine, where she graduated with a degree in history in May of 2011 and where she was captain of the women's volleyball team. In addition to spending time with Corey, Clare enjoys traveling, reading, and sports. Clare joined ALS TDI in September of 2011 with the hope of helping ALS TDI in its mission of developing therapeutics to save her brother and all patients living with the disease today.
Click to send email to: Mari Cody
Mari Cody
Public Relations Manager

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Mari joined ALS TDI's Communications team in November 2011 after several years at various public relations agencies. She is responsible for leading media relations activities to raise awareness and promote the mission of ALS TDI, which includes creating and editing press releases and media alerts, pitching and placing stories, and identifying and implementing other promotional opportunities. She also manages ALS TDI's social media channels. In her previous roles, Mari contributed to media placements at outlets such as The Wall Street Journal, The New York Times, Forbes, CNN and Fox Business. She graduated from Boston College with a degree in Communications.
Click to send email to: Maeve McNally
Maeve McNally
Executive Assistant

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Maeve joined ALS TDI in January 2012; she is originally from Ireland and holds a Degree in Business Administration. She previously worked as a project manager at Millennium Pharmaceuticals. Prior to this, she was employed at the Harvard Institute for International Development, following her role as an Administrator for a medical Non Government Organization based in East Africa that responded to complex emergencies. In her spare time, Maeve enjoys playing tennis. She lives with her family in Cambridge.
Click to send email to: Terri Handler
Terri Handler
Development Associate

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Being a member of a development team to raise funds for ALS research was never one of Terri's career goals, but goals change. ALS was an unknown disease to her family until January 2007, when her brother was diagnosed. They were devastated as they learned the details of his short future and supported him as he struggled to the end. When Terri moved to Boston in 2009, she approached the ALS Association to volunteer her time to do what was needed. Using her past experience in sales and education, she worked as an Event Planner, concentrating her efforts in Western Mass. In February 2011, she became more interested in research, and joined the Development Team at ALS TDI. She is pleased to be a part of the TDI team, a leader in reaching for a cure through cutting edge research. During the weekends, Terri enjoy hiking, biking and kayaking in the Berkshires with her husband and their three children.
Click to send email to: David Virden
David Virden
Senior Director of Brand Promotions

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Prior to joining ALS TDI in January 2012, David spent his career in consumer goods marketing developing initiatives and building awareness for brands including Dunkin' Donuts, Volkswagen and Samuel Adams. However, in October 2006 his father was diagnosed with ALS. From that moment forward, David wanted to apply his professional experience to ALS, creating the awareness and advocacy the disease so severely deserves. An annual rider in the ALS TDI Tri-State Trek since 2007, David has supported and admired ALS TDI's mission to end ALS. He is honored to be working for ALS TDI and doing his part to accomplish that mission. A graduate of Franklin & Marshall College, David enjoys cycling, being outdoors and dreaming of creative ways to entertain his two children.
Click to send email to: Ben Engle
Ben Engle
Development Manager, Brand Promotions

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Prior to becoming the Events Project Manager at ALS TDI, Ben spent several years working as a professional chef. He graduated from Northeastern University in 2010 with a bachelor's degree in Political Science and a minor in International Affairs. Ben is happy to be working with the team of intelligent and dedicated people at TDI who are 100% committed to finding a cure for ALS. While in college, Ben lived in Europe for a year in Germany and Portugal. He enjoys cooking and is happy that it is only a hobby now. He also enjoys travelling and being outdoors where he can hike and fish.
Click to send email to: Jillian Davis
Jillian Davis
Development Manager, Brand Promotions

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Jillian joined the team as Development Coordinator - Events after diving in to one of ALS TDI's largest annual events as a Tri-State Trek intern. She graduated from Syracuse University in May 2012 with a degree in Public Relations and Hospitality Management. Her prior experience providing administrative, event, and fundraising support for local nonprofits, along with her desire to help others, led her to pursue a career in the nonprofit world. After witnessing the dedication, passion, and excitement of ALS TDI supporters and staff at the Trek, she became committed to ALS TDI's mission to end ALS and is happy to be on board. In her spare time, Jillian loves traveling, photography, eating lots of ice cream, and spending time with family and friends.
Click to send email to: Jan Seeler
Jan Seeler
Clinical Coordinator

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Jan came to ALS TDI with over 25 years of management consulting and nonprofit management experience. In her current role as Clinical Coordinator for the Precision Medicine Program, she works directly with patients and their families as they enroll and participate in the Program. She also works with the Program team at the Institute on ongoing design and implementation matters. Her focus is on engaging participants in the Program and getting the science team the information they need to succeed in finding effective treatments for ALS. Jan has a BA from the University of New Hampshire and a Masters in Public and Private Management from Yale University. She lives in Wellesley with her husband and 2 children who all love science and research.
Click to send email to: Adam Gracia
Adam Gracia
Development Associate

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Adam comes to ALS TDI with a multifaceted background in nonprofit development and over his career has helped advance many worthy causes such as cancer research and animal welfare, as well as community, young professional, and leadership development. Drawn to the nonprofit biotech model and the mission-focused and entrepreneurial spirit of ALS TDI, Adam works to build engaging relationships with individuals and families affected by ALS to raise funds through personal and corporate giving, as well as special events. A native of Cape Cod, Adam spends his time with his two daughters, Ally and Ava, and their yorkie mix, Pepper, exploring beaches, hiking trails, and going to any and all 3D animated films. He holds bachelor degrees in English and Mass Communications from Westfield State University and a Masters in Management and Leadership from Webster University. Additionally, he is an Army veteran who served in Bosnia-Herzegovina and was an infantry squad leader at the time of his honorable discharge in 2008.
Click to send email to: Roxanne Murden
Roxanne Murden
Finance Manager

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No bio available
Click to send email to: Allison Kosciak
Allison Kosciak
Development Associate, Augie's Quest

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Allie began working for ALS TDI as a 2013 Tri-State Trek intern. She rejoined the brand promotions team in 2014 and is now part of the Augie's Quest team managing the ClubCorp Charity Classic program working on events at country and business clubs across the country. Allie's dedication to events and logistical work has made her a great asset to the team. She completed her undergraduate degree in marketing and public relations from Plymouth State University and has a Master's in Project Management through Northeastern University. In her free time, she enjoys traveling and spending time with family and friends.
Click to send email to: Gretchen Simoneaux
Gretchen Simoneaux
Senior Development Director

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With over 10 years of experience in fundraising and development, Gretchen joined ALS TDI in the spring of 2014 as a Development Director for the Augie's Quest Initiative. Gretchen was involved with Augie's Quest since its inception in 2005 at the Muscular Dystrophy Association working closely with Augie and Lynne Nieto. Her background includes extensive work with large committees and corporate partners to produce successful fundraising events including gala's, golf tournaments, resulting in millions of dollars in revenue for ALS research. Gretchen lives in San Clemente, CA with her husband and two children.
Click to send email to: Kelly Campbell
Kelly Campbell
Development Manager

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Joining ALS TDI in 2014, Kelly has over 15 years in non-profit experience, including working with Augie’s Quest for the past seven years. She has worked closely with Augie and Lynne Nieto on raising over $40 million for ALS research. Kelly leads the Clubs for the Quest initiative, a fundraising campaign designed for health clubs and the fitness industry, as well as working on Augie’s Quest signature events including The BASH and Tradition of Hope Gala. Kelly resides in San Diego, CA with her husband and two sons.
Click to send email to: Leah Ryan
Leah Ryan
Development Coordinator, Brand Promotions

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Leah joined ALS TDI's Brand Promotions Team as Development Coordinator in June of 2014 after several years of dabbling in non-profit work and event promotions. She graduated from Catawba College in May 2014 with a degree in Psychology and Business Administration. She has a passion for event management and helping others, which led her to pursue a career with the team at ALS TDI. In her free time, Leah enjoys traveling, volleyball, eating all types of food, and hanging out with family and friends. She is happy to be a part of the team and is prepared to work hard to help end ALS.
Click to send email to: Oltiana Mosko
Oltiana Mosko
Clinical Administrative Assistant

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Oltiana Mosko is the Clinical Administrative Assistant in the Precision Medicine Program and manages the distribution and maintenance of Actigraph devices for patient use. She programs the devices, downloads and inputs data and monitors supplies. She has experience running bioassays and laboratory bench studies, writing scientific reports and maintaining research lab operations and equipment. Mosko also brings significant nonprofit experience to her role at the Institute. When not working, she likes to go fishing and read books. Some of her favorite authors are P. Coelho, M. Albom, F. Hegel, and F. Dostoevsky.
Click to send email to: Marilyn Evans
Marilyn Evans
Development Director

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Marilyn Evans joins the Institute's development team with over 30 years sales experience in both for profit and nonprofit sectors. Her most recent work was as Development Director for The First Tee of Greater Dallas, a youth development organization that uses golf as the vehicle, steering children through their personal journey, and teaching life skills and core values such as sportsmanship, good judgment, honesty, and perseverance.

Having two personal friends recently diagnosed with ALS and watching the powerfully impactful movie, "The Theory of Everything", has led her to the ALS Therapy Development Institute to help raise awareness and funding throughout the Southwest.

Marilyn lives in Dallas and is married to Keith for 33 years. She proudly boasts of her two sons, both graduates of Texas A&M. Drew, 25, is a professional golfer on both the Adams and PGA Tour Canada, and Clay, 22, is a Product Service Analyst for Markit in Dallas. Marilyn is very excited to join the team to begin this new adventure. If she has spare time, it is spent on golf, cycling, gardening, reading, and traveling.

Click to send email to: Colette O'Neill
Colette O'Neill
Senior Director of Marketing, Communications & PR

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Colette O'Neill joined ALS TDI as the Senior Director of Marketing, Communications and PR in April 2015. She has spent over fifteen years leading marketing and communications efforts at Boston area non-profits, as well as running her own practice in marketing strategy, design and production. This is her debut in the bio-medical space; she is humbled to work amongst a group of people at the Institute who are incredibly passionate about their work, and 100% dedicated to finding a cure for ALS. Originally from Ireland, Colette moved to Boston in 1999, and now lives on Boston's north shore with her family. She loves photography, people, contemporary art, film, biking and spontaneous adventures with her 2.5 year old son.
Click to send email to: Jack Bouchard
Jack Bouchard
Finance Associate

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Jack has been working in nonprofits since college, and joined ALS TDI's team in June 2015, working in donation processing and donor stewardship. His mother was diagnosed with ALS in 2010, and since then Jack and his family have been committed to raising funds and awareness for ALS research on as many fronts as possible. Originally from Maine, he holds a degree in philosophy from the University of Southern Maine, and is pursuing a graduate degree in business from Suffolk University. In his free time, he is an avid foodie, bookworm, music lover, and lifelong fan of the New England Patriots.
Click to send email to: Jennifer McErlain
Jennifer McErlain
Development Manager

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Jennifer developed a passion for helping individuals affected by ALS and their families during her time working with the Muscular Dystrophy Association where she served as Health Care Services Coordinator. Prior to MDA, Jennifer worked with a nonprofit to assist people living in affordable housing communities achieve greater self-sufficiency through education and social services. She is deeply committed to the nonprofit world and helping people achieve their goals. In her free time, she enjoys spending time outdoors, discovering new music, and eating other people's cooking. She resides in Oakland, CA, with her husband, two young children, and her cat. Jennifer is proud and honored to join the team at ALS.net as a Development Manager and continue the fight against ALS.
Click to send email to: Jessica Bellows
Jessica Bellows
Brand Promotions Intern

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Jessica is a second year business student at Northeastern University. She is originally from Chester, New Jersey, but loves being in the city. Jessica is currently working at ALS TDI for her first co-op. In her free time, Jessica enjoys playing piano and racing on the Northeastern University Triathlon Team.
Click to send email to: Eric Hebert
Eric Hebert
Marketing, Communications, and Public Relations Intern

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Eric is a third year history and international affairs student at Northeastern University. Originally from a small town in rural New Hampshire, he spent his first few years out of high school playing Junior hockey, working, and traveling abroad. Now a Bostonian and part of the ALS TDI team, Eric comes to work every day with the ardency befitting the Institute’s mission. In his free time he enjoys cooking, drawing, and anything sport related.
Click to send email to: Angel Chanchea-Moser
Angel Chanchea-Moser
Development Director

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Angel Chanchea-Moser joined the Augie's Quest Development team for ALS TDI in July of 2015. Angel spent over 10 years with the Muscular Dystrophy Association where she spent most of her tenure as the Executive Director of the San Diego District, managing a large staff of fundraising and health care staff servicing ALS and Muscular Dystrophy patients throughout San Diego County while maintaining a robust fundraising budget of $2 million. Angel finds great pleasure in engaging corporate donors, families, and community leaders in the mission of ALS TDI and has already made a large impact on the Augie's Quest team. Angel resides in San Diego with her husband, son and their dog.